What does a patient group look like?
A patient group meeting lasts approximately 75 minutes and is divided into three naturally connected parts.
At the beginning, we present how our organization has progressed. We talk about new partnerships, events we have organized or are currently planning, as well as our activities, including interviews, podcasts, and articles. This introductory part is usually led by Maťo, Samo, or Kubo.
After the introductory overview, a professional medical segment follows, lasting about ten to fifteen minutes. In this part, we focus on one specific topic related to testicular cancer or areas of modern oncology. We often discuss new therapeutic approaches, innovations in treatment, current research, as well as opportunities to improve life after treatment and long‑term survivorship care. This segment is led by our experts, Associate Professor Miško and Associate Professor Katka, who have an exceptional talent for presenting even complex medical information in an understandable way.
The final part of the meeting is dedicated to an open discussion. Participants—whether they are patients, their loved ones, or anyone who wants to join—can share their stories, point out what they think our organization could improve, and ask any medical questions. The discussion is a space where everyone can speak honestly, without fear, knowing that no one will judge them.
What do we take away from the patient group?
Alongside the professional content, we always strive to create a pleasant atmosphere. The meetings also include small refreshments. However, more important than refreshments is that participants leave with a sense of belonging and the knowledge that they are not alone with their concerns.
We want them to know that there is a team ready to help—whether directly during the meetings or later through our social networks or via the email address spolocne@zdravievhrsti.sk. We also remind everyone that our digital channels are not only for patients, but for anyone who has questions or wants more information.
Key takeaways from this article
The patient groups of Health in Hands represent a place where education, human support, and shared experience come together. We create a community where people can feel safe, understood, and accepted, while also gaining space for personal growth, expert information, and help from peers as well as professionals. Our goal is to ensure that patients and their loved ones do not feel isolated but know that at every step of their journey, there is someone who will listen to and support them.
Author: Jakub Ribanský